Saturday August 8th…

First off, Happy Birthday to the Kilian twins Corinne and Laurel turned 6 today:) They celebrated at the Jersey shore. The pictures they sent were great but not as great as being there.

Last night I got my oxygen around 5pm. What a mess to just get some o2 I tell yah. My oncologists nurse kept giving me the run around all week and blamed it on the company when I am not so sure of that. It has been nice having it to take on walks.

The radiation finally caught up with me. I was so tired today, mouth and throat hurt and not really able to taste. Having 2 treatments left this week really feels good but I do know that it is a cumulative so I am likely to feel even worse this week.

Chemotherapy Decision: After thinking long and hard I have decided to go with Carboplatin and Abraxane. As nice as the other option sounded, not having many side effects and only going once a month for an intramuscular injection (I haven’t had good luck with shots), I don’t want the easy way. I want to throw the kitchen sink, and then some, at this cancer. I don’t need a walk in the park, I’m not 60 or 70 years old, I am 43 so I need/want hardcore stuff. Let’s kill this cancer for good. After 2-3 months of it I will have scans done and if it hasn’t worked I can then join the DESTINY trial I was talking about before. I’ll be getting chemotherapy, on for 2 weeks (so Monday and Monday) then off for 1 week and repeat. The plan is to go out of town Friday to Saturday and hopefully start chemotherapy Monday or Tuesday 8/24 or 8/25. That is where we stand right now. I have an appointment with the palliative care team on Thursday and I am trying to get labs drawn on Tuesday after my radiation. I haven’t had a baseline in a year so it will be nice to have done and then I may need them again the day of chemo which is fine. I’ll be getting more genetic testing done as well, the Ambry. I need to figure out how to get the kit to the lab for Tuesday. My week will be pretty light then. Thank you for continuing to read! Night night….